RESPECT: Relating Expectations and Needs to the Participation and Empowerment of Children in Clinical Trials

The RESPECT project answers the following questions:

  1. How can paediatric patients be better mobilised and empowered?
  2. How can they get the clinical outcomes that really matter to them?
  3. How can their needs be integrated into clinical trials?

RESPECT project coordinator:

  • John Chaplin PhD
  • Göteborg Pediatric Growth Research Center
  • Email:


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  • Focus group manual
    The DISABKIDS focus group manual
    provides a methodology to access children's subjective opinions concerning their quality of life. It has been used in the development of many chronic health related QoL questionnaires.