The RESPECT consortium consisted of experts from the fields of clinical research, patient representation, and European paediatric research ethics and regulation. The following experts were partners in the RESPECT project:
The EPF is a European umbrella NGO representing 44 chronic disease-specific patient organisations. The EPF works at the European level and with national coalitions of patients' organisations. EPF was the leading coordinator of the Value+ project promoting patients involvement in EU supported health-realted projects.
Consorzio per le Valutazioni Biologiche e Farmacologiche is a clinical research organisation (CRO) conducting and monitoring CTs, particularly with Thalassaemia patients, and coordinator of the TEDDY European Network of Excellence.
Azienda Ospedaliera di Padova - Dept of Pediatrics, University of Padua has expertise in the area of paediatric CTs with a focus on HIV. They are leading the EU project GRIP and led the steering committee of the PENTA paediatric CTs network.
University Medical Centre Hamburg-Eppendorf has expertise in the areas of patient reported outcome methods (PROMS) and the development of quality of life instruments for child self report (eg. (DISABKIDS). The Medical Psychology Dept. trains medical staff who will in the future conduct CTs with children.
Address for correspondence John Chaplin PhD, RESPECT project