The RESPECT consortium consisted of experts from the fields of clinical research, patient representation, and European paediatric research ethics and regulation. The following experts were partners in the RESPECT project:
The EPF is a European umbrella NGO representing 44 chronic disease-specific patient organisations. The EPF works at the European level and with national coalitions of patients' organisations. EPF was the leading coordinator of the Value+ project promoting patients involvement in EU supported health-realted projects.
Consorzio per le Valutazioni Biologiche e Farmacologiche is a clinical research organisation conducting and monitoring CTs, particularly with Thalassaemia patients, and coordinator of the TEDDY European Network of Excellence.
Azienda Ospedaliera di Padova - Dept of Pediatrics, University of Padua has expertise in the area of paediatric CTs with a focus on HIV. They are leading the EU project GRIP and led the steering committee of the PENTA paediatric CTs network.
University Medical Centre Hamburg-Eppendorf has expertise in the areas of patient-reported outcome measures and the development of quality-of-life instruments for child self report (eg. (DISABKIDS). The Medical Psychology Dept. trains medical staff who will in the future conduct CTs with children.