RESPECT patient needs
Recommendations to stakeholders
xpectations and Need
hildren in Clinical
The RESPECT project answers the following questions:
How can paediatric patients be better mobilised and empowered?
How can they get the clinical outcomes that really matter to them?
How can their needs be integrated into clinical trials?
RESPECT project coordinator:
John Chaplin PhD
Göteborg Pediatric Growth Research Center
Read online (above) or
download a PDF copy (15 MB)
The DISABKIDS focus group manual
provides a methodology to access children's subjective opinions concerning their quality of life. It has been used in the development of many chronic health related QoL questionnaires.